New cause for diabetes in babies found in non-coding genes

Scientists at the University of Exeter have identified DNA changes in two non-coding genes, RNU4ATAC and RNU6ATAC, as a cause of autoimmune neonatal diabetes in 19 babies.

Key findings

  • First time non-coding genes linked to neonatal diabetes: Unlike most genetic research that focuses on protein-coding genes, this study found mutations in genes that produce functional RNA molecules instead of proteins. These RNA molecules help regulate other genes and how genetic information is interpreted.
  • How it was discovered: Using genome sequencing of children worldwide through Exeter’s free genetic testing program for suspected genetic diabetes, researchers found mutations in these two genes disrupted ∼800 other genes, many tied to immune function.
  • Disease mechanism: All 19 children had an autoimmune form of diabetes where the immune system attacks insulin-producing beta cells, similar to type 1 diabetes. The mutations appear to disrupt immune pathways.

Why it matters

  1. Diagnosis: Up to half of people with rare diseases lack a diagnosis. Exploring non-coding DNA could provide answers for more families.
  2. Treatment potential: Understanding the cause opens possibilities for new treatments and better care for neonatal diabetes.
  3. Broader implications: One or more of the 800 disrupted genes may play a central role in autoimmune diabetes, potentially revealing new biology and drug targets for the more common type 1 diabetes.

Study details

  • Lead: Associate Professor Elisa De Franco, University of Exeter Medical School
  • Support: NIHR Exeter Biomedical Research Centre and Exeter NIHR Clinical Research Facility
  • Publication: Peer-reviewed, announced April 9, 2026

Dr De Franco noted this shows “the importance of non-protein coding genes and their potential to cause disease in humans.” Dr Matthew Johnson added that while this condition is rare, it gives researchers “a window into the ways type 1 diabetes can develop.

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